If I had known

11/03/2011
By

Hiro Fujita at home in Tokyo Photo: Pieter Franken

Scroll down to read in Japanese
ๆ—ฅๆœฌ่ชžใ‚’่ชญใ‚€ใซใฏใ‚นใ‚ฏใƒญใƒผใƒซใƒ€ใ‚ฆใƒณใ—ใฆไธ‹ใ•ใ„

The following is a message from Hiro to the thousands of people who read the article about him-http://bit.ly/tuHNxV.

TOKYO (majirox news) -I would like to thank everyone for their show of support. It is an honor to have you read about ALS, and about me. Your responses have encouraged me to fight for a cure even more. I will start a column to share this devastating, yet invaluable, experience with you.

Many have asked me questions so they can understand better what I am going through. There is one question in particular that I constantly think about: If I could have talked to Hiro before he developed ALS, what would I have said to him?

I would have said: go climb Mount Fuji today, enjoy regular walks in the park, rent a car and drive absolutely anywhere, rather than always planning to go somewhere.

A friend recently said that my situation made him wonder whether he was spending enough quality time with his friends and family. Itโ€™s a natural thought process, and certainly one that I experience as well. ALS has brought me a new appreciation for things to which I had not given much thought before. So, I asked my friend to ask himself whether he was spending enough quality time with “the world.”

Are we spending enough time being carefree, surrendering to the wind, the grass and the sun? Everything we encounter is like a presentation from the world. Itโ€™s our choice to stop and take a moment to admire it all. It hurts to realize that in the past, I raced through those moments, thinking I had something better to do.

Every morning, my helper comes to my apartment and helps me stretch out. He opens the windows, and while I am stretching, I can hear birds singing, cars driving by, kids playing on their way to school, people doing their laundry and such things.

In the past, I simply brushed this away as โ€œnoise.โ€ But now, these โ€œnoisesโ€ mean something more. They represent movement — people and things moving — and movement is something I no longer have. ALS is taking that away from me.

If I had known what was to happen, I would have spent a lot more time feeling, seeing, inhaling and appreciating the world around me. So, I ask you to take a moment tomorrow to walk through the park and simply enjoy it. Look out for me; I’ll be the guy in the wheelchair, smiling.

ใ“ใฎ่จ˜ไบ‹ใ‚’่ชญใ‚“ใงไธ‹ใ•ใฃใŸๅคšใใฎๆ–นใธใ€ใƒ’ใƒญใ‹ใ‚‰ใฎใƒกใƒƒใ‚ปใƒผใ‚ธใงใ™–http://bit.ly/tuHNxV-

็š†ๆง˜ใ‹ใ‚‰ใŸใใ•ใ‚“ใฎๅฟœๆดใ‚’้ ‚ใใ€ใจใฆใ‚‚ๆ„Ÿ่ฌใ—ใฆใ„ใพใ™ใ€‚ALSใจๅƒ•ใฎใ“ใจใซใคใ„ใฆ่ชญใ‚“ใง้ ‚ใ„ใฆๅ…‰ๆ „ใงใ™ใ€‚็š†ๆง˜ใฎๅๅฟœใ‚’ๅ—ใ‘ใ€ALSใฎๆฒป็™‚ๆณ•ใฎ้–‹็™บใซๅ‘ใ‘ใฆใ•ใ‚‰ใซๅŠชๅŠ›ใ‚’ใ—ใ‚ˆใ†ใจๅ‹‡ๆฐ—ใฅใ‘ใ‚‰ใ‚Œใพใ—ใŸใ€‚ใ“ใฎ็ตถๆœ›็š„ใชใ€ใ—ใ‹ใ—ใ‹ใ‘ใŒใˆใฎใชใ„็ตŒ้จ“ใ‚’ใ€ไปŠๅพŒใ‚ณใƒฉใƒ ใ‚’้€šใ˜ใฆ็š†ใ•ใ‚“ใจๅ…ฑๆœ‰ใงใใ‚Œใฐใจๆ€ใ„ใพใ™ใ€‚

ๅƒ•ใฎ็Šถๆณใ‚’็†่งฃใ—ใ‚ˆใ†ใจใ€ใŸใใ•ใ‚“ใฎๆ–นใ‹ใ‚‰่ณชๅ•ใ‚’้ ‚ใใพใ—ใŸใ€‚ใใฎไธญใซใฏ่‡ชๅˆ†ใŒๅธธใซ่€ƒใˆใฆใ„ใ‚‹่ณชๅ•ใŒใ‚ใ‚Šใพใ—ใŸ๏ผšใ‚‚ใ—ALSใ‚’็™บ็—‡ใ™ใ‚‹ๅ‰ใฎ่‡ชๅˆ†ใซๅ•ใ„ใ‹ใ‘ใ‚‹ใ“ใจใŒใงใใŸใ‚‰ใ€ไฝ•ใจ่จ€ใ†ใ ใ‚ใ†๏ผŸๅƒ•ใฏใ€ใ€Œใ„ใคใ‚‚ใฉใ“ใ‹ใธ่กŒใ่จˆ็”ปใ‚’ใ™ใ‚‹ใฎใงใฏใชใใ€ไปŠๆ—ฅใ€ๅฏŒๅฃซๅฑฑใซ็™ปใ‚ใ†ใ€ๅ…ฌๅœ’ใงๆ•ฃๆญฉใ‚’ๆฅฝใ—ใ‚‚ใ†ใ€่ปŠใง่กŒใใŸใ„ๆ‰€ใธ่กŒใ“ใ†ใ€ใจ่จ€ใฃใŸใงใ—ใ‚‡ใ†ใ€‚

ๆœ€่ฟ‘ใ€ๅ‹้”ใŒๅƒ•ใฎไบ‹ใ‚’็Ÿฅใฃใฆใ€่‡ชๅˆ†่‡ช่บซใŒๅ‹้”ใ‚„ๅฎถๆ—ใจๅ……ๅˆ†ใชๆ™‚้–“ใ‚’้Žใ”ใ—ใฆใ„ใ‚‹ใฎใ‹ใ€่€ƒใˆใ‚‹ใ‚ˆใ†ใซใชใฃใŸใใ†ใงใ™ใ€‚ใŠใใ‚‰ใ่ชฐใ‚‚ใŒใ”ใ่‡ช็„ถใซ่€ƒใˆใ‚‹ใ“ใจใงใ—ใ‚‡ใ†ใ—ใ€ๅƒ•่‡ช่บซใ‚‚ๅŒใ˜ไบ‹ใ‚’่€ƒใˆใพใ™ใ€‚ALSใ‚’็™บ็—‡ใ—ใฆใ‹ใ‚‰ใฏใ€ไปŠใพใงใ‚ใพใ‚Š่€ƒใˆใชใ‹ใฃใŸใ“ใจใซๅฏพใ—ใฆใ€ๆ–ฐใŸใซๆ„Ÿ่ฌใฎๅฟตใ‚’ๆŠฑใใ‚ˆใ†ใซใชใ‚Šใพใ—ใŸใ€‚

ใใ“ใงๅƒ•ใฏใ€ใ€ŒไปŠใ€่‡ชๅˆ†ใฎใ„ใ‚‹ไธ–็•Œใ€ใจๅ……ๅˆ†ใชๆ™‚้–“ใ‚’้Žใ”ใ—ใฆใ„ใ‚‹ใ‹ใฉใ†ใ‹ใ‚’่‡ชๅˆ†ใซๅ•ใ„ใ‹ใ‘ใฆใฟใฆๆฌฒใ—ใ„ใ€ใจๅ‹้”ใซไผใˆใพใ—ใŸใ€‚ๆ€ใ†ใŒใพใพใซใ€้ขจใ‚„่Š็”Ÿใ‚„ๅคช้™ฝใซ่บซใ‚’ไปปใ›ใฆใ„ใ‚‹ใ ใ‚ใ†ใ‹๏ผŸๅ…จใฆใฎๅ‡บๆฅไบ‹ใฏใ€ใ“ใฎไธ–ใ‹ใ‚‰ใฎ่ดˆใ‚Š็‰ฉใชใฎใงใ™ใ€‚ไธ€็žฌ็ซ‹ใกๆญขใพใฃใฆใ€ใใฎ็ด ๆ™ดใ‚‰ใ—ใ•ใ‚’ๅฎŸๆ„Ÿใ™ใ‚‹ๆ™‚้–“ใ‚’ใจใ‚‹ใ‹ใฉใ†ใ‹ใฏใ€่‡ชๅˆ†่‡ช่บซใฎ้ธๆŠžใงใ™ใ€‚ๅƒ•ใฏใ€ใ‚‚ใฃใจๅคงไบ‹ใชใ‚„ใ‚‹ในใใ“ใจใŒใ‚ใ‚‹ใจๆ€ใฃใฆใ€ไปŠใพใงใฏใ“ใ†ใ„ใฃใŸ็žฌ้–“ใ‚’่ถณๆ—ฉใซ้€šใ‚Š้ŽใŽใฆใใพใ—ใŸใ€‚ใใ‚Œใ‚’ๆ€ใ†ใจๅฟƒใŒ็—›ใฟใพใ™ใ€‚

ๆฏŽๆœใ€ใƒ˜ใƒซใƒ‘ใƒผใ•ใ‚“ใŒ่‡ชๅฎ…ใ‚’่จชใ‚Œใ€ไธ€็ท’ใซใ‚นใƒˆใƒฌใƒƒใƒใ‚’ใ—ใฆใใ‚Œใพใ™ใ€‚ๅฝผใŒ็ช“ใ‚’้–‹ใ‘ใ‚‹ใจใ€ใ‚นใƒˆใƒฌใƒƒใƒใ‚’ใ—ใฆใ„ใ‚‹้–“ใ€้ณฅใฎ้ณดใๅฃฐใ€่ปŠใŒ้€šใ‚Š้ŽใŽใ‚‹้Ÿณใ€้€šๅญฆใ—ใฆใ„ใ‚‹ๅญไพ›ใฎๅฃฐใ€ๆด—ๆฟฏ็‰ฉใ‚’ๅนฒใ—ใฆใ„ใ‚‹้ŸณใชใฉใŒ่žใ“ใˆใฆใใพใ™ใ€‚ไปŠใพใงใฏใ“ใ‚Œใ‚‰ใ‚’ๅ…จใฆใ€Œ้จ’้Ÿณใ€ใจใ—ใฆๆ‰ใˆใฆใ„ใพใ—ใŸใ€‚ใงใ‚‚ไปŠใฏใ“ใฎใ€Œ้จ’้Ÿณใ€ใŒใ‚‚ใฃใจๅคงใใชๆ„ๅ‘ณใ‚’ๆŒใฃใฆใ„ใ‚‹ใ“ใจใซๆฐ—ใฅใใพใ—ใŸใ€‚้Ÿณใฏๅ‹•ใใ‚’็พใ—ใฆใ„ใ‚‹ใฎใงใ™ไบบใ‚„็‰ฉใŒๅ‹•ใ„ใฆใ„ใ‚‹้Ÿณใ€ใ—ใ‹ใ—ใ€ไปŠใฎ่‡ชๅˆ†ใฏใ‚‚ใ†ใปใจใ‚“ใฉๅ‹•ใใ“ใจใŒใงใใพใ›ใ‚“ใ€‚ALSใŒใใ‚Œใ‚’ๅฅชใฃใฆใ„ใใฎใงใ™ใ€‚

ใ“ใ†ใชใ‚‹ใ“ใจใŒๅˆ†ใ‹ใฃใฆใ„ใŸใ‚‰ใ€ใ‚‚ใฃใจๅ‘จใ‚Šใฎไธ–็•Œใ‚’ๆ„Ÿใ˜ใ€่ฆ‹ใฆใ€ๅ‘ผๅธใ—ใฆใ€ๆ„Ÿ่ฌใฎๆฐ—ๆŒใกใ‚’ๆŒใฃใฆ้Žใ”ใ—ใฆใ„ใŸใจๆ€ใ„ใพใ™ใ€‚ใ ใ‹ใ‚‰็š†ใ•ใ‚“ใฏใ€ๆ˜Žๆ—ฅๅ…ฌๅœ’ใงๆ•ฃๆญฉใ‚’ใ—ใฆใ€ใใฎๆฅฝใ—ใ•ใ‚’ๅ‘ณใ‚ใฃใฆใใ ใ•ใ„ใ€‚ใใ—ใฆๅƒ•ใ‚’ๆŽขใ—ใฆใฟใฆใใ ใ•ใ„ใƒผ็ฌ‘้ก”ใง่ปŠใ„ใ™ใซไน—ใฃใฆใ„ใ‚‹ๅƒ•ใŒใ„ใ‚‹ใฏใšใงใ™ใ€‚

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